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Author Topic: Weblinks about Treatments  (Read 4299 times)
admin
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« on: July 16, 2008, 01:21:23 AM »

Medications

www.epilepsy.com/epilepsy/seizure_medicines
At this site there is one section for General Information, and then another section with a listing of each individual seizure medication. Each one of the seizure medications listed, name brand and generic, has its own link. Click on any one and it will lead you to the introduction page for the medication. On the right-hand side of the page is a menu box titled ‘Topics List’. Inside that menu box, directly below the words ‘Topic List’ are 3 tabs…Basic, Intermediate, Advanced. Click on any of the 3 individual tabs and you should see a scroll down listing of bullet points. A few of the bullet points are repeated under each tab, such as “What is (name of drug) used far? What are the most common side effects? What are the most serious side effects?”, but there might be some slightly different and or additional information. Anyway, there is a whole lot of information for each one of the medications. Plus, there’s another box located underneath that topics list, for a new comprehensive downloadable medication sheet, which is a pdf file. One more thing to add to this is that there is also a site for the ‘International AED Name Database’, where you can search by Brand, Generic, Country, and or Company. If you were to search by Generic name, the results would show what the brand name is is which country and the company that manufactures the drug. Before I knew of this new source, where you can find what is what and in which country, I only knew of the one International AED Database available via the site for the International League Against Epilepsy (ILAE). Home page at www.ilae.org/ and the AED Database at www.ilae.org/Visitors/Centre/AEDs/index.cfm

Treatments and Medications
faculty.washington.edu/chudler/epi.html

New Reasons To Avoid Grapefruit And Other Juices When Taking Certain Drugs
www.medicalnewstoday.com/articles/118714.php

Carbamazepine:
www.carbamazepine.com

Carbatrol:
www.carbatrol.com/Default.aspx

Depakote (valproic acid):
http://www.epilepsy.com/medications/i_depakote_rare.html

Depakote ER – divalproex sodium Extended-Release:
www.depakoteer.com/depakoteer/

DIASTAT AcuDial (diazepam rectal gel):
www.diastat.com/0-Home/index.html
www.diastat.com/HTML-INF/About_Diastat/Intro.htm

Dilantin (phenytoin):
www.epilepsy.com/medications/b_dilantin_intro

Keppra (levetriacetam):
www.keppra.com
Plus Epilepsy Advocates epilepsyadvocate.com

Keppra XR
www.keppraxr.com

Lamictal (lamotrigine):
www.medicationadvisor.com/side_effects/Lamictal.htm
www.epilepsy.com/medications/b_lamictal_serious.html

Lyrica (pregabalin):
www.lyrica.com/content/main_home.jsp
www.epilepsy.com/medications/i_lyrica_intro.html

Phenobarbital:
www.epilepsy.com/medications/b_phenobarbital_intro.html

Tegretol (carbamazepine):
professionals.epilepsy.com/medications/p_carbamazepine_common.html

Trileptal (oxcarbazepine):
www.trileptal.com/index.jsp
www.epilepsy.com/medications/b_trileptal_intro.html

Topamax (topiramate):
www.topamaxepilepsy.com/topamaxepilepsy/
https://www.ortho-mcneilneurologics.com/ortho-mcneilneurologics/pages/products_topamax-epilepsy.jsp
www.epilepsy.com/medications/b_topamax_side.html
www.webmd.com/content/article/64/72544.htm

Tranxene (clorazepate):
www.ovationpharma.com/products.php?prodid=5

Zarontin (ethosuximide):
www.epilepsy.com/medications/i_zarontin_side.html

Zonegran (Zonisamide):
www.changingfacesofepilepsy.com
www.epilepsy.com/medications/b_zonegran_side.html


Pharmaceuticals:

OVATION Pharmaceuticals, Inc.
www.ovationpharma.com/

Pfizer
www.pfizer.com/home/

Shire
www.shire.com
« Last Edit: April 08, 2009, 10:22:01 AM by admin » Logged

*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

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« Reply #1 on: August 29, 2008, 10:34:10 AM »

Don't forget the chart @ CWE (see first link in my signature).
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

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« Reply #2 on: September 04, 2008, 01:08:54 PM »

Partnership for Prescription Assistance:
https://www.pparx.org

NeedyMeds
www.needymeds.com

Can You Save Money on Seizure Medications
www.epilepsy.com/articles/ar_1063671365

RxAssist - Patient Assistance Program Center
www.rxassist.org

Epilepsy Health and Hope (Canada and Australia)
www.2betrhealth.com/index.html

www.clinicaltrials.gov:
This site, sponsored by the National Institutes of Health (NIH), lists thousands of clinical studies being performed by the NIH, other United States federal agencies, and the pharmaceutical industry. Studies in the database are conducted primarily in the United States and Canada, but locations in many other countries are included. Find out if you qualify to participate.

Online and mail-order pharmacies
People who must take medication for long periods often can save money by getting their prescription filled through an online or mail-order pharmacy. Here are a few to check out:

AARP Pharmacy Services
www.aarppharmacy.com

drugstore.com
www.drugstore.com

www.express-scripts.com
Express Scripts: A prescription benefits management company that fills prescriptions by mail for members.


Prescription drug assistance

www.medicare.gov
The Prescription Drug Assistance Programs section of Medicare.gov: This site provides information on public and private programs for discounted or free medications. Patients can search for programs by location (state or ZIP code) or by pharmaceutical company.

www.rxassist.org/default.cfm
RxAssist: A nonprofit group that provides information to health care providers to help patients get medications.

www.rxhope.com
Rxhope.com: A patient assistance company partially funded by the pharmaceutical manufacturers. It promises to speed requests for no-cost medications. The website includes information on which medicines are covered by assistance programs.


Medication reminders

www.epill.com
e-pill is a company that sells a wide range of medication reminders and organizers to help patients remember to take their medicines as prescribed.

www.pillsinyourpalm.com
OntimeRx is a medication reminder program that works on Palm held devices(PDAs).It provides alarm reminders, and a log which records whether each dose of medication was taken-or not. Personal health information can be stored on this device as well.

www.tabtime.com
Tabtime is a pocket-sized electronic pillbox, which through a system of 8 daily audio and visual alarms reminds the user that it is time to take his or her medication(s).

www.watchminder.com
The WatchMinder is a vibrating alarm watch designed as a training and reminder system for children and adults with memory problems, attention deficit disorders, or learning disabilities. The watch offers a reminder mode and a pay attention/training mode, with both modes operational simultaneously. This wristwatch contains up to 16 daily reminder alarms and 70 pre-programmed messages.
« Last Edit: September 04, 2008, 01:21:24 PM by admin » Logged

*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

admin
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« Reply #3 on: September 04, 2008, 01:22:04 PM »

Diets

Ketogenic Diet
www.epilepsy.com/epilepsy/treatment_ketogenic_diet

www.webmd.com/epilepsy/ketogenic-diet-for-epilepsy

site.matthewsfriends.org

www.charliefoundation.org
Website of The Charlie Foundation, a group dedicated to promoting the use of the ketogenic diet for children with epilepsy.

www.matthewsfriends.org
An informative and supportive website for those who wish to use the Ketogenic Diet as a treatment for childhood epilepsy. The aim of the website is to provide parents with an informed choice as well as promote the diet amongst health professionals so that it becomes more available.

www.stanford.edu/group/ketodiet/
Ketogenic diet web site created by the Pediatric Neurology Division at Stanford University School of Medicine. In-depth information for both parents and health care providers.

www.webmd.com/hw/epilepsy/aa138104.asp

www.pecanbread.com


Atkins
E-Book of Atkins for Seizures (personal stories and the diet)
www.atkinsforseizures.com/story.html

Modified Atkins Diet
www.epilepsy.com/epilepsy/treatment_atkins_diet.html

Recipes
www.epilepsy.com/epilepsy/atkins_recipes.html


G.A.R.D. Diet
dogtorj.tripod.com/id2.html
« Last Edit: April 01, 2009, 05:44:22 PM by admin » Logged

*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

admin
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« Reply #4 on: September 04, 2008, 01:22:34 PM »

Surgery

Different Types of Surgery - Brain Surgery Info
ecureme.healthology.com/epilepsy/article450.htm

Different Types of Brain Surgeries - Lobectomy, Hemeispherectomy, Corpus Callostomy, Multiple Subpeil Transection
epilepsysandiego.org/surgery.htm

Multiple Subpeil Transection Surgery - Special Brain Surgery
my.webmd.com/content/article/88/99677.htm

Brain lesions Causing Seizures
www.epilepsy.com/articles/ar_1066717256.html

Brain Surgeries
www.mayoclinic.com/health/epilepsy-surgery/BN00020

www.epilepsy.com/epilepsy/surgery.html

Risk form Brain Surgery
www.pennhealth.com/ency/article/003018.htm


GammaKnive Radiosurgery
www.sd-neurosurgeon.com/practice/gamma_knife.html

Multiple Subpial Transection
www.webmd.com/epilepsy/multiple-subpial-transection-MST
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*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

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« Reply #5 on: September 04, 2008, 01:23:07 PM »

Brain Stimulators

VNS (Vagus Nerve Stimulation) - Cyberonics

www.cyberonics.com/

www.vnsmessageboard.com/


NeuroPace - Responsive Neurostimulator

www.neuropace.com
www.neuropace.com/trials/overview.html

Plus more...

www.mayoclinic.org/news2007-jax/3972.html

www.mayoclinic.org/patientstories/story-242.html

www.bcm.edu/findings/vol4/is10/06nov_p.html

epilepsy.suite101.com/article.cfm/epilepsys_new_hope

...and these that I have listed are only a few. There are many more that I?m sure will come up by using the ?All the Internet? search engine, which can be found at www.alltheinternet.com


Intercept Epilepsy Control System

www.epilepsycontrol.com

www.medgadget.com/archives/2008/12/medtronic_to_seek_fda_approval_of_brain_stimulation_device_for_epilepsy.html
« Last Edit: April 01, 2010, 07:48:56 PM by admin » Logged

*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

admin
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« Reply #6 on: September 04, 2008, 01:23:49 PM »

Alternative Epilepsy Treatments

Pyridoxine Dependency
www.epilepsy.org.uk/information/pyridoxine.html

Chiropractors
International Chiropractor of Pediatrics Association.
www.icpa4kids.org/index.htm

Cranial Sacral Therapy
www.upledger.com/home.htm

Reiki Massage
www.reiki.org

Shiatsu
www.shiatsusociety.org

Diaphragmatic Breathing
Breathing Technique to help Seizures
www.epilepsyhealth.com/deep-breathing.html

www.swamij.com/diaphragmatic-breathing.htm

How to do the Breathing?
www.huff-n-puff.net/diaphragmatic.htm

Doctors for Alternative Medicine
American Association of National Naturopathic Physicians
www.naturopathic.org

Find Alternative Doctors
www.acam.org/dr_search

Integrative Medicine Directory-ICIM
www.icimed.com/index.php

Mozart?s Music for Epilepsy
www.epilepsy.org.uk/information/mozart.html

Edgar Cayce - Abdominal Epilepsy
www.edgarcayce.org/health/database/health_resources/concepts/abdominal_epilepsy.asp

www.edgarcayce.org/health/database/health_resources/epilepsy.asp

Epilepsy Project
www.meridianinstitute.com/projects.htm

Story, Online Web Sites
my.epilepsy.com/?q=node/800741

Vitamins, diet, foods to avoid. . . . . . Doctor J
dogtorj.tripod.com/id2.html

Dahn Yoga
www.dahnyoga.com

Hinduism Yoga and Epilepsy
hinduism.about.com/library/weekly/aa122501a.htm

Alternative Epilepsy Treatments
epilepsyalternatives.freeservers.com

Alternative Ways to Help Epilepsy
www.andrewsreiter.com

Healing Centers - What We Can Do To Help Our Epilepsy
www.wholehealthmd.com/hc/resourceareas_learn/1,1441,550,00.html

Neurofeedback, Omega Three Acids, Maps, and Ketogenic Diet
Check Treatments and Surgery link also check Omega three fatty acids
pages.prodigy.net/unohu/efa_sources.htm
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*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

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« Reply #7 on: September 04, 2008, 01:24:21 PM »

Ritalin and Antiepileptic Medications - Is it Safe?
www.ritalindeath.com

Bone Loss from Antiepileptic Medications
www.epilepsyfoundation.org/epilepsyusa/between/bonehealth.cfm

www.eurekalert.org/pub_releases/2004-06/aaon-edc060204.php

Calcium
healthlink.mcw.edu/article/964794298.html

Calcium and Magnesium
www.wholehealthmd.com/refshelf/substances_view/1,1525,890,00.html

Foods that Have Calcium in it.
www.cdc.gov/powerfulbones/parents/toolbox/list.html

Seizures, Medications, and Vitamin D
www.indiana.edu/~pietsch/zoerickets.html

Dexascan
Test for Bone Loss
www.sdmi-lv.com/patients/services/dexascan_print.htm

Mayo Clinic - Grapefruit Juice Interactions
www.mayoclinic.com/invoke.cfm?objectid=030B3A25-E0B9-450A-BE55A9860E9889A9

Herb and Essential Oils - What to Avoid
www.epilepsy.com/epilepsy/alternative_oils.html

Mushrooms are they Poisonous?
www.chop.edu/consumer/jsp/division/generic.jsp?id=70990

Why Should I Not Drink Grapefruit Juice with my Medications?
bipolar.about.com/od/medications/f/faq_grapefruitj.htm

Medications that cause bad breath!
www.therabreath.com/art_medication.asp?AffID=1368

Remedies to help Bad Breath
www.health911.com/remedies/rem_badbr.htm

Discount for Medications
www.destinationrx.com

Free Medication Foundation
www.freemedicinefoundation.com

Keppra - Free Medication
www.wecaremedicalmall.com/FreeRx.htm

Needy Medications
www.needymeds.com

Partnership for Assistance Prescription
https://www.pparx.org/Intro.php

Paying for Medication In California
www.rxhelpforca.org

Together RX Access
www.togetherrxaccess.com

Pharmaceutical Companies
www.fda.gov/CDER/ogd/approvals/1stgen1205.htm

RX list -Brand or Generic - Have A Question About Medications?
www.rxlist.com/cgi/generic/brand.htm

Substitution from Brand to Generic - How Safe is Substituting?
www.epilepsyfoundation.org/advocacy/care/genedrev.cfm

United Kingdom Medication List
www.epilepsy.org.uk/information/drugslist.html
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*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

admin
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« Reply #8 on: September 04, 2008, 01:25:47 PM »

Recreational Therapy Organizations
Recreational therapy is a new, rapidly growing profession. The success of using leisure activities for treatment has spread beyond the epilepsy community. Now it's commonly used for people with orthopedic injuries, mental retardation, autism, learning disabilities, and cancer, to name a few. If you are interested in becoming involved, contact any of these organizations devoted to recreational therapy:

American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, Virginia 22314
703/683-9420
www.atra-tr.org
Founded in 1984, the American Therapeutic Recreation Association (ATRA) is the largest national membership organization representing the interests and needs of recreational therapists. The site includes information on how to contact about 30 local chapter affiliates (www.atra-tr.org/affiliatecouncildirectory.htm).

National Therapeutic Recreation Society
22377 Belmont Ridge Road
Ashburn, VA 20148
703/858-0784
www.nrpa.org/content/default.aspx?documentId=530
The National Therapeutic Recreation Society (NTRS) is a branch of the National Recreation and Park Association. It provides a support network for its members and advocates the belief that leisure and recreation are basic rights and critical to health and happiness for all, regardless of physical or mental ability.


Treatment
www.epilepsyontario.org/client/EO/EOWeb.nsf/web/Treatment+of+Photosensitivity

Low Glycemic Index Treatment
www.epilepsy.com/epilepsy/keto_news_may07.html

M.A.P.S.
Gordon-Pomares Center
www.gordonpomarescentre.com

Medtronic
wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1130863572667

Neurofeedback - What and How does it Work?
www.isnr.org

Neurofeedback Information and Physicians
www.eeginfo.com

Neurofeedback LENS
www.ochslabs.com/intro.php?nf=1&code=intro&picID=brain&label=Introduction%20to%20LENS

What is Neurofeedback?
www.eegspectrum.com

Progesterone
www.drlam.com/A3R_brief_in_doc_format/progesterone.cfm

When does the progesterone decrease in the body?
search.jeffersonhospital.org/index.cfm?fuseaction=search.doSearch&Search=progesterone&search.x=14&search.y=18

Puberty
www.epilepsy.com/information/family_teens_puberty.html

Hormone Therapy
professionals.epilepsy.com/wi/print_section.php?section=hormones_catamenial

Hormone and Seizures
www.epilepsy.com/epilepsy/provoke_menstrual.html

Hormones Decreasing?
www.maxihealth.com/pms.htm

Polycystic Ovary Syndrome (PCOS)
www.epilepsy.com/information/women_pcos.html
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*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

admin
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« Reply #9 on: September 04, 2008, 01:26:08 PM »

Vimpat (lacosamide) Approved In Europe
www.medicalnewstoday.com/articles/120117.php

Vimpat (lacosamide)
www.drugs.com/nda/vimpat_071129.html
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*I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself.

Never argue with idiots. They bring you down to their level and then beat you with experience.

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« Reply #10 on: April 01, 2010, 05:49:08 PM »

Please update the url for the VNS message Board.  We have moved off the InvisionFree Boards to our own server!

www.vnsmessageboard.com
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http://www.vnsmessageboard.com

"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

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